Skip to main content
GSA 2023 Main banner
Icon Legend
This session is not in your schedule.
This session is in your schedule. Click again to remove it.
Back
Symposium

Social Research, Policy, and Practice

The Essential Role of Paid Caregivers in Home-Based Dementia Care

Friday, November 10, 2023
12:00 PM – 1:30 PM ET
Location: Room 413

Paid caregivers (e.g., home health aides, other home care workers) provide essential support to the rapidly growing number of people with dementia living in the community. This symposium presents innovative findings on the role of paid caregivers in home-based dementia care though exploration of the clinical, family, and care-delivery contexts in which paid caregivers work. First, Reckrey et al describe the scope of paid caregiving in dementia using nationally representative data examining factors associated with receipt of paid care among older adults with overlapping dementia and non-dementia serious illness. Next, we examine mechanisms of delivering paid care: Osakwe et al explore paid caregiver perceptions about the use of telehealth in home health and identify paid caregivers concerns about routine use of this technology in care of people with dementia, and Gordon-Wexler et al explore family caregiver perspectives on navigating Medicare and Medicaid insurance for people with advanced dementia and the challenges they experience coordinating paid care. Finally, we explore how paid caregivers work with other care team members. Quach et al discuss multidisciplinary perspectives about how paid caregivers support person-centered and relationship-centered care to family dementia caregivers, while Fabius et al examine information sharing practices within home care agencies and describe differences and similarities in information sharing needs for people with and without dementia. Taken together, these presentations highlight the important ways that paid caregivers work with providers and families within the care delivery system and identify ways to better support and integrate these essential workers into dementia care teams.

This is a Paid Caregiving Interest Group Sponsored Symposium.

Learning Objectives:

  • Describe the prevalence of and factors associated with receipt of paid care among those with dementia.
  • Identify ways that home care delivery mechanisms (e.g., Telehealth, managed Medicaid) impact day-to-day care for people with dementia.
  • List best practices for paid caregiver collaboration with caregiving families and the the home care team.

Presentations:

  • 12:00 PM – 1:30 PM ET
    The Role of Dementia and Serious Illness in Receipt of Paid Care

    Individual Symposium Abstract First Author: Jennifer Reckrey, MD (she/her/hers) – Icahn School of Medicine at Mount Sinai

  • 12:00 PM – 1:30 PM ET
    "Caregiving Is Teamwork..." Information Sharing in Home Care for Older Adults With Disabilities in the Community

    Individual Symposium Abstract First Author: Chanee D. Fabius, PhD, MA (she/her/hers) – Johns Hopkins University

  • 12:00 PM – 1:30 PM ET
    Perceptions of Home Health Aides (HHA) Caring for Persons Living With Dementia (PLWD) about adoption of Telehealth

    Individual Symposium Abstract First Author: Zainab Toteh Osakwe, PhD, RN, NP (she/her/hers) – Adelphi University

  • 12:00 PM – 1:30 PM ET
    "It Shouldn't Be Like This": Family Caregivers Navigating Insurance for Family Members With Dementia

    Individual Symposium Abstract First Author: Deborah Watman, MPH (she/her/hers) – Icahn School of Medicine at Mount Sinai

  • 12:00 PM – 1:30 PM ET
    Paid Caregivers Provide Social Support to Family Caregivers of Older Adults With Dementia

    Individual Symposium Abstract First Author: Emma Quach, PhD (she/they) – VA Bedford Center for Healthcare Organization and Implementation Research; New England Geriatrics Research, Education, and Clinical Center (GRECC)