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Symposium

Social Research, Policy, and Practice

Policy Series: Are We There Yet? Measuring Progress in Achieving Policy Goals for Family Caregivers

Saturday, November 11, 2023
3:30 PM – 5:00 PM ET
Location: Room 109

The RAISE Family Caregiving Advisory Council, created under the Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act (2018) has been tasked to support the Secretary of Health and Human Services in developing a national family caregiving strategy, published in 2022 as its National Strategy to Support Family Caregivers. One key concern identified by advocates and others is the accountability question: how can we hold policymakers at all levels of government accountable for achieving the policy goals articulated in the National Strategy? This symposium discusses that issue by first providing an overview of a key mechanism for state accountability, AARP’s State Scorecard on Long-Term Services and Supports, which identifies support for family caregivers as one of its four dimensions. Susan Reinhard, PhD, Senior Vice President at AARP and Director of its Public Policy Institute, will describe the history, goals, and future of the Scorecard’s family caregiver component. Salom Teshale, PhD, from the National Academy for State Health Policy will describe how states are focusing their energies in current actions supporting family caregivers, while Mike Wittke, MPA, of the National Alliance for Caregiving will discuss how federal actions might be tracked and assessed. Drawing on research supporting the RAISE Advisory Council, Eileen J. Tell, MPH will suggest additional dimensions that could be integrated into the assessment of progress. Rani Snyder, MPA, of the John A. Hartford Foundation will act as discussant.

Learning Objectives:

  • Understand the policy options available to promote accountability for progress in supporting family caregivers at the federal, state, and other levels, in line with the RAISE Family Caregiver Advisory Council's Nation Strategy to Support Family Caregivers..
  • Describe the role of AARP's Long Term Services and Supports State Scorecard in incentivizing policy change at the state level for family caregivers, as well as how that Scorecard might be supplemented to reflect additional parameters of state action.
  • Describe a proposed systematic process to map the actions that federal agencies have identified as core priorities to support family caregivers and track their progress toward implementation.

Presentations:

  • 3:30 PM – 5:00 PM ET
    The Role of the LTSS Scorecard in Promoting State Accountability for Caregiver Policy

    Individual Symposium Abstract First Author: Susan C. Reinhard, PhD, MSN – AARP

  • 3:30 PM – 5:00 PM ET
    Implementing a Stakeholder and Policy Map to Track Federal Caregiver Policy Activity

    Individual Symposium Abstract First Author: Michael Wittke, BSW, MPA (he/him/his) – National Alliance for Caregiving

  • 3:30 PM – 5:00 PM ET
    The National Strategy to Support Family Caregivers: A State-Level Perspective on Implementation

    Individual Symposium Abstract First Author: Salom M. Teshale, PhD (she/her/hers) – The National Academy for State Health Policy

  • 3:30 PM – 5:00 PM ET
    Using the LTSS State Scorecard to Measure Progress on the 2022 National Strategy to Support Family Caregivers

    Individual Symposium Abstract First Author: Eileen J. Tell, MPH – ET Consulting