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Symposium

Behavioral and Social Sciences

Aligning Assessments and Measures of Caregiver Neglect with Intervention Development: New Insights and Directions

Friday, November 10, 2023
8:00 AM – 9:30 AM ET
Location: Room 123

As one of the most common forms of elder mistreatment, caregiver neglect is associated with significant morbidity and mortality. The unique stresses, demands, and challenges associated with family caregiving likely increases the risk of neglect. Addressing the multifaceted nature of caregiver neglect in diverse family caregivers of older persons necessitates alignment of meaningful assessments and methodologies with evidence-based intervention development. Gaps in knowledge that urgently need filling include refining conceptual and operational definitions of caregiver neglect, validating novel measurement approaches, and identifying effective caregiver-centered study engagement and recruitment strategies. To address these gaps, this symposium will draw upon insights from four caregiver neglect studies across community and clinical settings. Dr. David Hancock will characterize prevalence and correlates of caregiver neglect using unmet activities of daily living needs in a sample of dementia patients and their caregivers. Dr. E-Shien Chang will test the impact of varying operational definitions of caregiver neglect on prevalence estimates and associated risk and protective factors. Dr. Tony Rosen will present a novel, validated caregiver neglect severity measure to more accurately assess the impact of neglect on older persons’ health and quality of life outcomes. Dr. Farida Ejaz will highlight challenges and successes in identifying and involving family caregivers at risk of neglectful caregiving behaviors to inform intervention. Finally, Dr. Alan Stevens, as policy and advocacy expert for family caregivers, will provide summative comments and recommendations for policy and practice changes to better reduce risk of neglect and improve support for family caregivers.

Learning Objectives:

  • Characterize prevalence, risk, and resilience factors of caregiver neglect among family caregivers of older persons.
  • Describe emerging neglect measurement and intervention resources for those working with family caregivers.
  • Identify the challenges and lessons learned in bridging findings from emerging caregiver neglect research to long-term care policy and practice changes.

Presentations:

  • 8:00 AM – 9:30 AM ET
    Activities of Daily Living (ADL) Neglect in Individuals With Dementia

    Individual Symposium Abstract First Author: David W. Hancock, PhD (he/him/his) – Weill Cornell Medicine

  • 8:00 AM – 9:30 AM ET
    Characterizing Caregiver Neglect in Older Persons With Dementia: Operational Definitions and Risk Factors

    Individual Symposium Abstract First Author: E-Shien Chang, PhD (she/her/hers) – Weill Cornell Medicine

  • 8:00 AM – 9:30 AM ET
    Developing a Scale to Measure Neglect Severity: The Health-Related Severity in Elder Neglect Scale

    Individual Symposium Abstract First Author: Tony Rosen, MD, MPH – Weill Cornell Medicine

  • 8:00 AM – 9:30 AM ET
    Testing an Intervention to Prevent Caretaker Neglect: Challenges in Recruiting Study Participants

    Individual Symposium Abstract First Author: Farida K. Ejaz, PhD, FGSA, LISW-S (she/her/hers) – Benjamin Rose Institute on Aging